{"id":2544,"date":"2026-08-20T22:31:55","date_gmt":"2026-08-20T20:31:55","guid":{"rendered":"https:\/\/kleefstrasyndrome.com\/?page_id=2544"},"modified":"2026-08-21T01:02:34","modified_gmt":"2026-08-20T23:02:34","slug":"organizations-and-useful-links","status":"publish","type":"page","link":"https:\/\/kleefstrasyndrome.com\/el\/organizations-and-useful-links\/","title":{"rendered":"\u03a6\u03bf\u03c1\u03b5\u03af\u03c2 \u03ba\u03b1\u03b9 \u03c7\u03c1\u03ae\u03c3\u03b9\u03bc\u03bf\u03b9 \u03c3\u03cd\u03bd\u03b4\u03b5\u03c3\u03bc\u03bf\u03b9"},"content":{"rendered":"\n<div class=\"wp-block-group\"><div class=\"wp-block-group__inner-container is-layout-constrained wp-block-group-is-layout-constrained\">\n<p class=\"wp-block-paragraph\">\u0397 \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7 \u03bc\u03b9\u03b1\u03c2 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1\u03c2 \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ae\u03c2 \u03c0\u03ac\u03b8\u03b7\u03c3\u03b7\u03c2 \u03c3\u03c5\u03c7\u03bd\u03ac \u03b4\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03b5\u03af \u03c0\u03bf\u03bb\u03bb\u03ad\u03c2 \u03b5\u03c1\u03c9\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2. \u03a0\u03bf\u03cd \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bc\u03b9\u03b1 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b1 \u03bd\u03b1 \u03b2\u03c1\u03b5\u03b9 \u03b1\u03be\u03b9\u03cc\u03c0\u03b9\u03c3\u03c4\u03b7 \u03b5\u03bd\u03b7\u03bc\u03ad\u03c1\u03c9\u03c3\u03b7; \u03a5\u03c0\u03ac\u03c1\u03c7\u03bf\u03c5\u03bd \u03ac\u03bb\u03bb\u03b5\u03c2 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03bc\u03b5 \u03a3\u03cd\u03bd\u03b4\u03c1\u03bf\u03bc\u03bf Kleefstra; \u03a0\u03bf\u03b9\u03b1 \u03ba\u03ad\u03bd\u03c4\u03c1\u03b1 \u03ad\u03c7\u03bf\u03c5\u03bd \u03b5\u03be\u03b5\u03b9\u03b4\u03af\u03ba\u03b5\u03c5\u03c3\u03b7; \u03a0\u03bf\u03cd \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03ad\u03bd\u03b1\u03c2 \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b1\u03c2 \u03c5\u03b3\u03b5\u03af\u03b1\u03c2 \u03bd\u03b1 \u03b1\u03bd\u03b1\u03b6\u03b7\u03c4\u03ae\u03c3\u03b5\u03b9 \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ad\u03c2 \u03bf\u03b4\u03b7\u03b3\u03af\u03b5\u03c2; \u039a\u03b1\u03b9 \u03c0\u03ce\u03c2 \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03ba\u03ac\u03c0\u03bf\u03b9\u03bf\u03c2 \u03bd\u03b1 \u03b5\u03bd\u03b7\u03bc\u03b5\u03c1\u03c9\u03b8\u03b5\u03af \u03ae \u03bd\u03b1 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ac\u03c3\u03c7\u03b5\u03b9 \u03c3\u03c4\u03b7\u03bd \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u03a3\u03c4\u03b7 \u03c3\u03b5\u03bb\u03af\u03b4\u03b1 \u03b1\u03c5\u03c4\u03ae \u03c3\u03c5\u03b3\u03ba\u03b5\u03bd\u03c4\u03c1\u03ce\u03bd\u03bf\u03bd\u03c4\u03b1\u03b9 <strong>\u03c6\u03bf\u03c1\u03b5\u03af\u03c2, \u03bf\u03c1\u03b3\u03b1\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd, \u03b5\u03be\u03b5\u03b9\u03b4\u03b9\u03ba\u03b5\u03c5\u03bc\u03ad\u03bd\u03b1 \u03ba\u03ad\u03bd\u03c4\u03c1\u03b1, \u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03bf\u03bd\u03b9\u03ba\u03ac \u03b4\u03af\u03ba\u03c4\u03c5\u03b1 \u03ba\u03b1\u03b9 \u03b1\u03be\u03b9\u03cc\u03c0\u03b9\u03c3\u03c4\u03b5\u03c2 \u03c0\u03b7\u03b3\u03ad\u03c2<\/strong> \u03c0\u03bf\u03c5 \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03b5\u03af\u03bd\u03b1\u03b9 \u03c7\u03c1\u03ae\u03c3\u03b9\u03bc\u03b5\u03c2 \u03c3\u03b5 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2, \u03c6\u03c1\u03bf\u03bd\u03c4\u03b9\u03c3\u03c4\u03ad\u03c2 \u03ba\u03b1\u03b9 \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b5\u03c2 \u03c5\u03b3\u03b5\u03af\u03b1\u03c2.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u039f\u03b9 \u03c3\u03cd\u03bd\u03b4\u03b5\u03c3\u03bc\u03bf\u03b9 \u03bf\u03b4\u03b7\u03b3\u03bf\u03cd\u03bd \u03c3\u03b5 \u03b5\u03be\u03c9\u03c4\u03b5\u03c1\u03b9\u03ba\u03ad\u03c2 \u03b9\u03c3\u03c4\u03bf\u03c3\u03b5\u03bb\u03af\u03b4\u03b5\u03c2. \u0397 \u03b1\u03bd\u03b1\u03c6\u03bf\u03c1\u03ac \u03b5\u03bd\u03cc\u03c2 \u03c6\u03bf\u03c1\u03ad\u03b1 \u03b4\u03b5\u03bd \u03c3\u03b7\u03bc\u03b1\u03af\u03bd\u03b5\u03b9 \u03b1\u03c0\u03b1\u03c1\u03b1\u03af\u03c4\u03b7\u03c4\u03b1 \u03b5\u03c0\u03af\u03c3\u03b7\u03bc\u03b7 \u03c3\u03c5\u03bd\u03b5\u03c1\u03b3\u03b1\u03c3\u03af\u03b1 \u03ae \u03ad\u03b3\u03ba\u03c1\u03b9\u03c3\u03b7 \u03b1\u03c0\u03cc \u03c4\u03bf kleefstrasyndrome.com.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">\u0394\u03b9\u03b5\u03b8\u03bd\u03ae\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03bf \u03a3\u03cd\u03bd\u03b4\u03c1\u03bf\u03bc\u03bf Kleefstra<\/h2>\n\n\n\n<h3 class=\"wp-block-heading\">IDefine \u2013 The Kleefstra Syndrome Foundation<\/h3>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:40%\">\n<figure class=\"wp-block-image size-full has-lightbox\"><a href=\"https:\/\/www.idefine.org\/\" target=\"_blank\" rel=\" noreferrer noopener\"><img decoding=\"async\" width=\"291\" height=\"130\" src=\"https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/idefine.webp\" alt=\"\" class=\"wp-image-2545\"\/><\/a><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<p class=\"wp-block-paragraph\">\u03a4\u03bf <strong>IDefine<\/strong> \u03b5\u03af\u03bd\u03b1\u03b9 \u03ad\u03bd\u03b1\u03c2 \u03bc\u03b7 \u03ba\u03b5\u03c1\u03b4\u03bf\u03c3\u03ba\u03bf\u03c0\u03b9\u03ba\u03cc\u03c2 \u03bf\u03c1\u03b3\u03b1\u03bd\u03b9\u03c3\u03bc\u03cc\u03c2 \u03bc\u03b5 \u03b5\u03c0\u03af\u03ba\u03b5\u03bd\u03c4\u03c1\u03bf \u03c4\u03bf \u03a3\u03cd\u03bd\u03b4\u03c1\u03bf\u03bc\u03bf Kleefstra. \u0394\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03ae\u03b8\u03b7\u03ba\u03b5 \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03c3\u03c5\u03bd\u03b4\u03ad\u03c3\u03b5\u03b9 \u03c4\u03b9\u03c2 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2, \u03bd\u03b1 \u03b5\u03bd\u03b9\u03c3\u03c7\u03cd\u03c3\u03b5\u03b9 \u03c4\u03b7\u03bd \u03b5\u03bd\u03b7\u03bc\u03ad\u03c1\u03c9\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03b5\u03c0\u03b9\u03c4\u03b1\u03c7\u03cd\u03bd\u03b5\u03b9 \u03c4\u03b7\u03bd \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1 \u03bc\u03b5 \u03c3\u03c4\u03cc\u03c7\u03bf \u03c4\u03b7\u03bd \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03b7 \u03ba\u03b1\u03c4\u03b1\u03bd\u03cc\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03c0\u03ac\u03b8\u03b7\u03c3\u03b7\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03b1\u03bd\u03ac\u03c0\u03c4\u03c5\u03be\u03b7 \u03bc\u03b5\u03bb\u03bb\u03bf\u03bd\u03c4\u03b9\u03ba\u03ce\u03bd \u03c3\u03c4\u03bf\u03c7\u03b5\u03c5\u03bc\u03ad\u03bd\u03c9\u03bd \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03b9\u03ce\u03bd.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u03a3\u03ae\u03bc\u03b5\u03c1\u03b1 \u03c4\u03bf IDefine \u03c5\u03c0\u03bf\u03c3\u03c4\u03b7\u03c1\u03af\u03b6\u03b5\u03b9 \u03ad\u03bd\u03b1 \u03b5\u03c5\u03c1\u03cd \u03c6\u03ac\u03c3\u03bc\u03b1 \u03b4\u03c1\u03b1\u03c3\u03c4\u03b7\u03c1\u03b9\u03bf\u03c4\u03ae\u03c4\u03c9\u03bd, \u03b1\u03c0\u03cc \u03c4\u03b7 \u03b4\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03af\u03b1 \u03ba\u03c5\u03c4\u03c4\u03b1\u03c1\u03b9\u03ba\u03ce\u03bd \u03bc\u03bf\u03bd\u03c4\u03ad\u03bb\u03c9\u03bd \u03ba\u03b1\u03b9 \u03b2\u03b9\u03bf\u03c4\u03c1\u03b1\u03c0\u03b5\u03b6\u03ce\u03bd \u03ad\u03c9\u03c2 \u03bc\u03b5\u03bb\u03ad\u03c4\u03b5\u03c2 \u03c6\u03c5\u03c3\u03b9\u03ba\u03ae\u03c2 \u03b9\u03c3\u03c4\u03bf\u03c1\u03af\u03b1\u03c2, \u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03bf\u03bd\u03b9\u03ba\u03ad\u03c2 \u03c3\u03c5\u03bd\u03b5\u03c1\u03b3\u03b1\u03c3\u03af\u03b5\u03c2, \u03c3\u03c5\u03bd\u03ad\u03b4\u03c1\u03b9\u03b1 \u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd \u03ba\u03b1\u03b9 \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03ce\u03bd \u03ba\u03b1\u03b9 \u03c0\u03c1\u03bf\u03b3\u03c1\u03ac\u03bc\u03bc\u03b1\u03c4\u03b1 \u03c0\u03bf\u03c5 \u03b4\u03b9\u03b5\u03c1\u03b5\u03c5\u03bd\u03bf\u03cd\u03bd \u03bd\u03ad\u03b5\u03c2 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03c5\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c0\u03c1\u03bf\u03c3\u03b5\u03b3\u03b3\u03af\u03c3\u03b5\u03b9\u03c2.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0393\u03b9\u03b1 \u03c4\u03b9\u03c2 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03b5\u03c0\u03af\u03c3\u03b7\u03c2 \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03ae \u03c0\u03b7\u03b3\u03ae \u03b5\u03bd\u03b7\u03bc\u03ad\u03c1\u03c9\u03c3\u03b7\u03c2 \u03b3\u03b9\u03b1 \u03bd\u03ad\u03b5\u03c2 \u03bc\u03b5\u03bb\u03ad\u03c4\u03b5\u03c2, \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03b9\u03ba\u03ac \u03c0\u03c1\u03bf\u03b3\u03c1\u03ac\u03bc\u03bc\u03b1\u03c4\u03b1, \u03c3\u03c5\u03bd\u03ad\u03b4\u03c1\u03b9\u03b1 \u03ba\u03b1\u03b9 \u03b5\u03c5\u03ba\u03b1\u03b9\u03c1\u03af\u03b5\u03c2 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae\u03c2 \u03c3\u03c4\u03b7\u03bd \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.idefine.org\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u0395\u03c0\u03af\u03c3\u03b7\u03bc\u03b7 \u03b9\u03c3\u03c4\u03bf\u03c3\u03b5\u03bb\u03af\u03b4\u03b1 IDefine<\/a><\/p>\n<\/div>\n<\/div>\n\n\n\n<h3 class=\"wp-block-heading\">IDefine Europe<\/h3>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:40%\">\n<figure class=\"wp-block-image size-full has-lightbox\"><a href=\"https:\/\/idefine-europe.org\/\" target=\"_blank\" rel=\" noreferrer noopener\"><img fetchpriority=\"high\" decoding=\"async\" width=\"350\" height=\"148\" src=\"https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/IDefineEU.png\" alt=\"\" class=\"wp-image-2552\" srcset=\"https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/IDefineEU.png 350w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/IDefineEU-300x127.png 300w\" sizes=\"(max-width: 350px) 100vw, 350px\" \/><\/a><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<p class=\"wp-block-paragraph\">\u03a4\u03bf <strong>IDefine Europe \u2013 Foundation for the Advanced Treatment of Rare Genetic Diseases<\/strong> \u03b5\u03af\u03bd\u03b1\u03b9 \u03bc\u03b7 \u03ba\u03c5\u03b2\u03b5\u03c1\u03bd\u03b7\u03c4\u03b9\u03ba\u03cc\u03c2 \u03bf\u03c1\u03b3\u03b1\u03bd\u03b9\u03c3\u03bc\u03cc\u03c2 \u03bc\u03b5 \u03ad\u03b4\u03c1\u03b1 \u03c4\u03b7 \u03a3\u03bb\u03bf\u03b2\u03b5\u03bd\u03af\u03b1. \u0391\u03c3\u03c7\u03bf\u03bb\u03b5\u03af\u03c4\u03b1\u03b9 \u03bc\u03b5 \u03c4\u03b7\u03bd \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03c5\u03c0\u03b5\u03c1\u03ac\u03c3\u03c0\u03b9\u03c3\u03b7 \u03c4\u03c9\u03bd \u03b1\u03c4\u03cc\u03bc\u03c9\u03bd \u03bc\u03b5 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b5\u03c2 \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03b9\u03c2, \u03bc\u03b5 \u03b1\u03c1\u03c7\u03b9\u03ba\u03cc \u03ba\u03b1\u03b9 \u03b9\u03b4\u03b9\u03b1\u03af\u03c4\u03b5\u03c1\u03b1 \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03cc \u03c0\u03b5\u03b4\u03af\u03bf \u03b4\u03c1\u03b1\u03c3\u03c4\u03b7\u03c1\u03b9\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 \u03c4\u03bf \u03a3\u03cd\u03bd\u03b4\u03c1\u03bf\u03bc\u03bf Kleefstra.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u039f\u03b9 \u03b4\u03c1\u03b1\u03c3\u03c4\u03b7\u03c1\u03b9\u03cc\u03c4\u03b7\u03c4\u03ad\u03c2 \u03c4\u03bf\u03c5 \u03c0\u03b5\u03c1\u03b9\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03bf\u03c5\u03bd data science \u03ba\u03b1\u03b9 \u03c4\u03b5\u03c7\u03bd\u03b7\u03c4\u03ae \u03bd\u03bf\u03b7\u03bc\u03bf\u03c3\u03cd\u03bd\u03b7, \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1, advocacy, \u03b5\u03ba\u03c0\u03b1\u03af\u03b4\u03b5\u03c5\u03c3\u03b7, \u03bc\u03b5\u03c4\u03b1\u03c6\u03bf\u03c1\u03ac \u03b3\u03bd\u03ce\u03c3\u03b7\u03c2 \u03ba\u03b1\u03b9 \u03b4\u03b9\u03b1\u03c3\u03cd\u03bd\u03b4\u03b5\u03c3\u03b7 \u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd, \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03ce\u03bd \u03ba\u03b1\u03b9 \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ce\u03bd. \u03a4\u03bf IDefine Europe \u03c3\u03c5\u03bd\u03b5\u03c1\u03b3\u03ac\u03b6\u03b5\u03c4\u03b1\u03b9 \u03c3\u03c4\u03b5\u03bd\u03ac \u03bc\u03b5 \u03c4\u03bf IDefine \u03c3\u03c4\u03b9\u03c2 \u0397\u03a0\u0391 \u03ba\u03b1\u03b9 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03b5\u03b9 \u03c3\u03b5 \u03b5\u03c5\u03c1\u03c9\u03c0\u03b1\u03ca\u03ba\u03ac \u03b4\u03af\u03ba\u03c4\u03c5\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b9\u03c2 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b5\u03c2 \u03bd\u03b5\u03c5\u03c1\u03bf\u03b1\u03bd\u03b1\u03c0\u03c4\u03c5\u03be\u03b9\u03b1\u03ba\u03ad\u03c2 \u03b4\u03b9\u03b1\u03c4\u03b1\u03c1\u03b1\u03c7\u03ad\u03c2.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0397 \u03b9\u03c3\u03c4\u03bf\u03c3\u03b5\u03bb\u03af\u03b4\u03b1 \u03c4\u03bf\u03c5 \u03c0\u03b5\u03c1\u03b9\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03b5\u03b9 \u03b5\u03c0\u03af\u03c3\u03b7\u03c2 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03af\u03b5\u03c2 \u03b3\u03b9\u03b1 \u03b5\u03c5\u03c1\u03c9\u03c0\u03b1\u03ca\u03ba\u03ad\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b5\u03c2 Kleefstra, \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c0\u03c1\u03c9\u03c4\u03bf\u03b2\u03bf\u03c5\u03bb\u03af\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03c0\u03c1\u03bf\u03b3\u03c1\u03ac\u03bc\u03bc\u03b1\u03c4\u03b1 \u03c3\u03c5\u03bb\u03bb\u03bf\u03b3\u03ae\u03c2 \u03b4\u03b5\u03b4\u03bf\u03bc\u03ad\u03bd\u03c9\u03bd.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/idefine-europe.org\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u0395\u03c0\u03af\u03c3\u03b7\u03bc\u03b7 \u03b9\u03c3\u03c4\u03bf\u03c3\u03b5\u03bb\u03af\u03b4\u03b1 IDefine Europe<\/a><\/p>\n<\/div>\n<\/div>\n\n\n\n<h3 class=\"wp-block-heading\">Kleefstra Syndrome Europe Alliance<\/h3>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:40%\">\n<figure class=\"wp-block-image size-full has-lightbox\"><a href=\"https:\/\/idefine-europe.org\/kleefstra-syndrome\/\" target=\"_blank\" rel=\" noreferrer noopener\"><img decoding=\"async\" width=\"656\" height=\"468\" src=\"https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/KS_europe.png\" alt=\"\" class=\"wp-image-2556\" srcset=\"https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/KS_europe.png 656w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/KS_europe-600x428.png 600w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/KS_europe-450x321.png 450w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/KS_europe-300x214.png 300w\" sizes=\"(max-width: 656px) 100vw, 656px\" \/><\/a><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<p class=\"wp-block-paragraph\">\u03a4\u03bf <strong>Kleefstra Syndrome Europe Alliance<\/strong> \u03bb\u03b5\u03b9\u03c4\u03bf\u03c5\u03c1\u03b3\u03b5\u03af \u03c9\u03c2 \u03b5\u03c5\u03c1\u03c9\u03c0\u03b1\u03ca\u03ba\u03cc\u03c2 \u03ba\u03cc\u03bc\u03b2\u03bf\u03c2 \u03c3\u03c5\u03bd\u03c4\u03bf\u03bd\u03b9\u03c3\u03bc\u03bf\u03cd \u03b3\u03b9\u03b1 \u03c4\u03b9\u03c2 \u03b5\u03b8\u03bd\u03b9\u03ba\u03ad\u03c2 \u03bf\u03c1\u03b3\u03b1\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2, \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03c3\u03b7\u03bc\u03b5\u03af\u03b1 \u03b5\u03c0\u03b1\u03c6\u03ae\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03bf \u03a3\u03cd\u03bd\u03b4\u03c1\u03bf\u03bc\u03bf Kleefstra.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u03a3\u03c4\u03cc\u03c7\u03bf\u03c2 \u03c4\u03bf\u03c5 \u03b5\u03af\u03bd\u03b1\u03b9 \u03bd\u03b1 \u03b4\u03b9\u03b5\u03c5\u03ba\u03bf\u03bb\u03cd\u03bd\u03b5\u03b9 \u03c4\u03b7\u03bd \u03b5\u03c0\u03b9\u03ba\u03bf\u03b9\u03bd\u03c9\u03bd\u03af\u03b1 \u03bc\u03b5\u03c4\u03b1\u03be\u03cd \u03c4\u03c9\u03bd \u03b5\u03c5\u03c1\u03c9\u03c0\u03b1\u03ca\u03ba\u03ce\u03bd \u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd, \u03c4\u03b7\u03bd \u03b1\u03bd\u03c4\u03b1\u03bb\u03bb\u03b1\u03b3\u03ae \u03b1\u03be\u03b9\u03cc\u03c0\u03b9\u03c3\u03c4\u03c9\u03bd \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03b9\u03ce\u03bd \u03ba\u03b1\u03b9 \u03c4\u03b7 \u03c3\u03c5\u03bd\u03b5\u03c1\u03b3\u03b1\u03c3\u03af\u03b1 \u03bc\u03b5\u03c4\u03b1\u03be\u03cd \u03c4\u03c9\u03bd \u03b5\u03b8\u03bd\u03b9\u03ba\u03ce\u03bd \u03ba\u03bf\u03b9\u03bd\u03bf\u03c4\u03ae\u03c4\u03c9\u03bd. \u03a3\u03c4\u03bf \u03b5\u03c5\u03c1\u03c9\u03c0\u03b1\u03ca\u03ba\u03cc \u03b4\u03af\u03ba\u03c4\u03c5\u03bf \u03c0\u03b5\u03c1\u03b9\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03bf\u03bd\u03c4\u03b1\u03b9 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03c3\u03b7\u03bc\u03b5\u03af\u03b1 \u03b5\u03c0\u03b1\u03c6\u03ae\u03c2 \u03b1\u03c0\u03cc \u03c0\u03bf\u03bb\u03bb\u03ad\u03c2 \u03c7\u03ce\u03c1\u03b5\u03c2, \u03bc\u03b5\u03c4\u03b1\u03be\u03cd \u03c4\u03c9\u03bd \u03bf\u03c0\u03bf\u03af\u03c9\u03bd \u03ba\u03b1\u03b9 \u03b7 \u0395\u03bb\u03bb\u03ac\u03b4\u03b1.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0393\u03b9\u03b1 \u03bc\u03b9\u03b1 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b1 \u03c0\u03bf\u03c5 \u03b1\u03bd\u03b1\u03b6\u03b7\u03c4\u03ac \u03b5\u03c0\u03b1\u03c6\u03ae \u03bc\u03b5 \u03ac\u03bb\u03bb\u03b5\u03c2 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03c3\u03c4\u03b7\u03bd \u0395\u03c5\u03c1\u03ce\u03c0\u03b7, \u03b1\u03c5\u03c4\u03ae \u03b5\u03af\u03bd\u03b1\u03b9 \u03bc\u03af\u03b1 \u03b1\u03c0\u03cc \u03c4\u03b9\u03c2 \u03c0\u03b9\u03bf \u03c7\u03c1\u03ae\u03c3\u03b9\u03bc\u03b5\u03c2 \u03b1\u03c6\u03b5\u03c4\u03b7\u03c1\u03af\u03b5\u03c2.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/idefine-europe.org\/kleefstra-syndrome\/\" target=\"_blank\" rel=\"noreferrer noopener\">Kleefstra Syndrome Europe Alliance \u03ba\u03b1\u03b9 \u03b5\u03c5\u03c1\u03c9\u03c0\u03b1\u03ca\u03ba\u03ad\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b5\u03c2<\/a><\/p>\n<\/div>\n<\/div>\n\n\n\n<h2 class=\"wp-block-heading\">\u03a6\u03bf\u03c1\u03b5\u03af\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b9\u03c2 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b5\u03c2 \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03b9\u03c2 \u03c3\u03c4\u03b7\u03bd \u0395\u03bb\u03bb\u03ac\u03b4\u03b1<\/h2>\n\n\n\n<h3 class=\"wp-block-heading\">\u0388\u03bd\u03c9\u03c3\u03b7 \u03a3\u03c0\u03b1\u03bd\u03af\u03c9\u03bd \u0391\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u0395\u03bb\u03bb\u03ac\u03b4\u03b1\u03c2 \u2013 \u0395\u03a3\u0391\u0395<\/h3>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:40%\">\n<figure class=\"wp-block-image size-full has-lightbox\"><a href=\"https:\/\/rarediseasesgreece.gr\/\" target=\"_blank\" rel=\" noreferrer noopener\"><img loading=\"lazy\" decoding=\"async\" width=\"1194\" height=\"437\" src=\"http:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/\u0395\u03a3\u0391\u0395.png\" alt=\"\" class=\"wp-image-2573\" srcset=\"https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/\u0395\u03a3\u0391\u0395.png 1194w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/\u0395\u03a3\u0391\u0395-600x220.png 600w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/\u0395\u03a3\u0391\u0395-1024x375.png 1024w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/\u0395\u03a3\u0391\u0395-450x165.png 450w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/\u0395\u03a3\u0391\u0395-768x281.png 768w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/\u0395\u03a3\u0391\u0395-300x110.png 300w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/\u0395\u03a3\u0391\u0395-850x311.png 850w\" sizes=\"(max-width: 1194px) 100vw, 1194px\" \/><\/a><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<p class=\"wp-block-paragraph\">\u0397 <strong>\u0388\u03bd\u03c9\u03c3\u03b7 \u03a3\u03c0\u03b1\u03bd\u03af\u03c9\u03bd \u0391\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u0395\u03bb\u03bb\u03ac\u03b4\u03bf\u03c2 (\u0395.\u03a3.\u0391.\u0395.)<\/strong> \u03b5\u03af\u03bd\u03b1\u03b9 \u03c3\u03c9\u03bc\u03b1\u03c4\u03b5\u03af\u03bf \u03bc\u03b7 \u03ba\u03b5\u03c1\u03b4\u03bf\u03c3\u03ba\u03bf\u03c0\u03b9\u03ba\u03bf\u03cd \u03c7\u03b1\u03c1\u03b1\u03ba\u03c4\u03ae\u03c1\u03b1 \u03bc\u03b5 \u03c0\u03b1\u03bd\u03b5\u03bb\u03bb\u03b1\u03b4\u03b9\u03ba\u03ae \u03b5\u03bc\u03b2\u03ad\u03bb\u03b5\u03b9\u03b1, \u03c0\u03bf\u03c5 \u03c3\u03c5\u03b3\u03ba\u03c1\u03bf\u03c4\u03b5\u03af\u03c4\u03b1\u03b9 \u03b1\u03c0\u03cc \u03c3\u03c5\u03bb\u03bb\u03cc\u03b3\u03bf\u03c5\u03c2, \u03c3\u03c9\u03bc\u03b1\u03c4\u03b5\u03af\u03b1 \u03ba\u03b1\u03b9 \u03bf\u03c1\u03b3\u03b1\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03bc\u03b5 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03bd\u03bf\u03c3\u03ae\u03bc\u03b1\u03c4\u03b1. \u03a3\u03ae\u03bc\u03b5\u03c1\u03b1 \u03b5\u03ba\u03c0\u03c1\u03bf\u03c3\u03c9\u03c0\u03b5\u03af \u03b4\u03b5\u03ba\u03ac\u03b4\u03b5\u03c2 \u03bf\u03c1\u03b3\u03b1\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2-\u03bc\u03ad\u03bb\u03b7 \u03ba\u03b1\u03b9 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03ad\u03bd\u03b1\u03bd \u03b1\u03c0\u03cc \u03c4\u03bf\u03c5\u03c2 \u03b2\u03b1\u03c3\u03b9\u03ba\u03bf\u03cd\u03c2 \u03c6\u03bf\u03c1\u03b5\u03af\u03c2 \u03b5\u03ba\u03c0\u03c1\u03bf\u03c3\u03ce\u03c0\u03b7\u03c3\u03b7\u03c2 \u03c4\u03b7\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 \u03c4\u03c9\u03bd \u03c3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03c3\u03c4\u03b7\u03bd \u0395\u03bb\u03bb\u03ac\u03b4\u03b1.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u039f\u03b9 \u03b4\u03c1\u03ac\u03c3\u03b5\u03b9\u03c2 \u03c4\u03b7\u03c2 \u03b5\u03c0\u03b9\u03ba\u03b5\u03bd\u03c4\u03c1\u03ce\u03bd\u03bf\u03bd\u03c4\u03b1\u03b9 \u03c3\u03c4\u03b7\u03bd \u03c0\u03c1\u03bf\u03ac\u03c3\u03c0\u03b9\u03c3\u03b7 \u03c4\u03c9\u03bd \u03b4\u03b9\u03ba\u03b1\u03b9\u03c9\u03bc\u03ac\u03c4\u03c9\u03bd \u03c4\u03c9\u03bd \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd, \u03c4\u03b7\u03bd \u03b9\u03c3\u03cc\u03c4\u03b9\u03bc\u03b7 \u03c0\u03c1\u03cc\u03c3\u03b2\u03b1\u03c3\u03b7 \u03c3\u03c4\u03b7 \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7, \u03c4\u03b7 \u03c6\u03c1\u03bf\u03bd\u03c4\u03af\u03b4\u03b1 \u03ba\u03b1\u03b9 \u03c4\u03b9\u03c2 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b5\u03c2, \u03c4\u03b7\u03bd \u03b1\u03bd\u03ac\u03c0\u03c4\u03c5\u03be\u03b7 \u03bc\u03b7\u03c4\u03c1\u03ce\u03c9\u03bd \u03ba\u03b1\u03b9 \u03ba\u03ad\u03bd\u03c4\u03c1\u03c9\u03bd \u03b1\u03bd\u03b1\u03c6\u03bf\u03c1\u03ac\u03c2, \u03c4\u03b7\u03bd \u03b5\u03bd\u03b7\u03bc\u03ad\u03c1\u03c9\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03b5\u03ba\u03c0\u03b1\u03af\u03b4\u03b5\u03c5\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2, \u03ba\u03b1\u03b8\u03ce\u03c2 \u03ba\u03b1\u03b9 \u03c3\u03c4\u03b7 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae \u03c3\u03c4\u03bf\u03bd \u03c3\u03c7\u03b5\u03b4\u03b9\u03b1\u03c3\u03bc\u03cc \u03c0\u03bf\u03bb\u03b9\u03c4\u03b9\u03ba\u03ce\u03bd \u03c5\u03b3\u03b5\u03af\u03b1\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b9\u03c2 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b5\u03c2 \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03b9\u03c2. \u0397 \u0395.\u03a3.\u0391.\u0395. \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03b5\u03b9 \u03b5\u03c0\u03af\u03c3\u03b7\u03c2 \u03c3\u03b5 \u03b5\u03b8\u03bd\u03b9\u03ba\u03ad\u03c2 \u03b5\u03c0\u03b9\u03c4\u03c1\u03bf\u03c0\u03ad\u03c2 \u03ba\u03b1\u03b9 \u03bf\u03bc\u03ac\u03b4\u03b5\u03c2 \u03b5\u03c1\u03b3\u03b1\u03c3\u03af\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03b5\u03ba\u03c0\u03c1\u03bf\u03c3\u03c9\u03c0\u03b5\u03af \u03c4\u03b7\u03bd \u03b5\u03bb\u03bb\u03b7\u03bd\u03b9\u03ba\u03ae \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c3\u03b5 \u03b5\u03c5\u03c1\u03c9\u03c0\u03b1\u03ca\u03ba\u03bf\u03cd\u03c2 \u03ba\u03b1\u03b9 \u03b4\u03b9\u03b5\u03b8\u03bd\u03b5\u03af\u03c2 \u03bf\u03c1\u03b3\u03b1\u03bd\u03b9\u03c3\u03bc\u03bf\u03cd\u03c2, \u03bc\u03b5\u03c4\u03b1\u03be\u03cd \u03c4\u03c9\u03bd \u03bf\u03c0\u03bf\u03af\u03c9\u03bd \u03b7 EURORDIS \u03ba\u03b1\u03b9 \u03b7 Rare Diseases International.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0393\u03b9\u03b1 \u03c4\u03b9\u03c2 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03ad\u03c3\u03b5\u03b9 \u03c7\u03c1\u03ae\u03c3\u03b9\u03bc\u03b7 \u03c0\u03b7\u03b3\u03ae \u03b3\u03b9\u03b1 \u03b5\u03bd\u03b7\u03bc\u03ad\u03c1\u03c9\u03c3\u03b7 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03b4\u03b9\u03ba\u03b1\u03b9\u03ce\u03bc\u03b1\u03c4\u03b1 \u03ba\u03b1\u03b9 \u03ba\u03bf\u03b9\u03bd\u03c9\u03bd\u03b9\u03ba\u03ad\u03c2 \u03c0\u03b1\u03c1\u03bf\u03c7\u03ad\u03c2, \u03c0\u03c1\u03cc\u03c3\u03b2\u03b1\u03c3\u03b7 \u03c3\u03b5 \u03c5\u03c0\u03b7\u03c1\u03b5\u03c3\u03af\u03b5\u03c2 \u03c5\u03b3\u03b5\u03af\u03b1\u03c2, \u03b4\u03c1\u03ac\u03c3\u03b5\u03b9\u03c2 \u03c4\u03b7\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03b6\u03b7\u03c4\u03ae\u03bc\u03b1\u03c4\u03b1 \u03c0\u03bf\u03c5 \u03b1\u03c6\u03bf\u03c1\u03bf\u03cd\u03bd \u03c3\u03c5\u03bd\u03bf\u03bb\u03b9\u03ba\u03ac \u03c4\u03bf\u03c5\u03c2 \u03b1\u03bd\u03b8\u03c1\u03ce\u03c0\u03bf\u03c5\u03c2 \u03c0\u03bf\u03c5 \u03b6\u03bf\u03c5\u03bd \u03bc\u03b5 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03bd\u03bf\u03c3\u03ae\u03bc\u03b1\u03c4\u03b1 \u03c3\u03c4\u03b7\u03bd \u0395\u03bb\u03bb\u03ac\u03b4\u03b1. \u0397 \u0388\u03bd\u03c9\u03c3\u03b7 \u03ad\u03c7\u03b5\u03b9 \u03b5\u03ba\u03b4\u03ce\u03c3\u03b5\u03b9, \u03bc\u03b5\u03c4\u03b1\u03be\u03cd \u03ac\u03bb\u03bb\u03c9\u03bd, \u03ba\u03b1\u03b9 \u03b5\u03bd\u03b7\u03bc\u03b5\u03c1\u03c9\u03bc\u03ad\u03bd\u03bf \u039f\u03b4\u03b7\u03b3\u03cc \u0394\u03b9\u03ba\u03b1\u03b9\u03c9\u03bc\u03ac\u03c4\u03c9\u03bd \u03ba\u03b1\u03b9 \u039a\u03bf\u03b9\u03bd\u03c9\u03bd\u03b9\u03ba\u03ce\u03bd \u03a0\u03b1\u03c1\u03bf\u03c7\u03ce\u03bd \u03b3\u03b9\u03b1 \u03ac\u03c4\u03bf\u03bc\u03b1 \u03c0\u03bf\u03c5 \u03b6\u03bf\u03c5\u03bd \u03bc\u03b5 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03bd\u03bf\u03c3\u03ae\u03bc\u03b1\u03c4\u03b1.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/rarediseasesgreece.gr\/\" target=\"_blank\" rel=\"noreferrer noopener\">Rare Diseases Greece \u2013 \u0395.\u03a3.\u0391.\u0395.<\/a><\/p>\n<\/div>\n<\/div>\n\n\n\n<h3 class=\"wp-block-heading\">\u03a0\u03b1\u03bd\u03b5\u03bb\u03bb\u03ae\u03bd\u03b9\u03b1 \u0388\u03bd\u03c9\u03c3\u03b7 \u03a3\u03c0\u03b1\u03bd\u03af\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd \u2013 \u03a0\u0395\u03a3\u03a0\u0391<\/h3>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:40%\">\n<figure class=\"wp-block-image size-full has-lightbox\"><a href=\"https:\/\/pespa.gr\/\" target=\"_blank\" rel=\" noreferrer noopener\"><img loading=\"lazy\" decoding=\"async\" width=\"442\" height=\"442\" src=\"http:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/\u03c0\u03b5\u03c3\u03c0\u03b1.jpg\" alt=\"\" class=\"wp-image-2559\" srcset=\"https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/\u03c0\u03b5\u03c3\u03c0\u03b1.jpg 442w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/\u03c0\u03b5\u03c3\u03c0\u03b1-300x300.jpg 300w\" sizes=\"(max-width: 442px) 100vw, 442px\" \/><\/a><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<p class=\"wp-block-paragraph\">\u0397 <strong>\u03a0\u03b1\u03bd\u03b5\u03bb\u03bb\u03ae\u03bd\u03b9\u03b1 \u0388\u03bd\u03c9\u03c3\u03b7 \u03a3\u03c0\u03b1\u03bd\u03af\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd (\u03a0\u0395\u03a3\u03a0\u0391)<\/strong> \u03b9\u03b4\u03c1\u03cd\u03b8\u03b7\u03ba\u03b5 \u03c4\u03bf 2003 \u03ba\u03b1\u03b9 \u03bb\u03b5\u03b9\u03c4\u03bf\u03c5\u03c1\u03b3\u03b5\u03af \u03c9\u03c2 \u03c6\u03bf\u03c1\u03ad\u03b1\u03c2-\u03bf\u03bc\u03c0\u03c1\u03ad\u03bb\u03b1 \u03b3\u03b9\u03b1 \u03ac\u03c4\u03bf\u03bc\u03b1 \u03ba\u03b1\u03b9 \u03c3\u03c5\u03bb\u03bb\u03cc\u03b3\u03bf\u03c5\u03c2 \u03c0\u03bf\u03c5 \u03b5\u03ba\u03c0\u03c1\u03bf\u03c3\u03c9\u03c0\u03bf\u03cd\u03bd \u03c3\u03c0\u03ac\u03bd\u03b9\u03b5\u03c2 \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03b9\u03c2 \u03c3\u03c4\u03b7\u03bd \u0395\u03bb\u03bb\u03ac\u03b4\u03b1.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u03a3\u03c4\u03b9\u03c2 \u03b4\u03c1\u03b1\u03c3\u03c4\u03b7\u03c1\u03b9\u03cc\u03c4\u03b7\u03c4\u03ad\u03c2 \u03c4\u03b7\u03c2 \u03c0\u03b5\u03c1\u03b9\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b7 \u03b5\u03bd\u03b7\u03bc\u03ad\u03c1\u03c9\u03c3\u03b7, \u03b7 \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7, \u03b7 \u03c3\u03c5\u03b3\u03ba\u03ad\u03bd\u03c4\u03c1\u03c9\u03c3\u03b7 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03b9\u03ce\u03bd, \u03b7 \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7 \u03c4\u03c9\u03bd \u03b1\u03c4\u03cc\u03bc\u03c9\u03bd \u03bc\u03b5 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b5\u03c2 \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03b9\u03c2 \u03ba\u03b1\u03b9 \u03b7 \u03c0\u03c1\u03bf\u03ce\u03b8\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03c2 \u03c3\u03c5\u03bd\u03b5\u03c1\u03b3\u03b1\u03c3\u03af\u03b1\u03c2. \u0395\u03af\u03bd\u03b1\u03b9 \u03b5\u03c0\u03af\u03c3\u03b7\u03c2 \u03bc\u03ad\u03bb\u03bf\u03c2 \u03c4\u03bf\u03c5 \u03b5\u03c5\u03c1\u03c9\u03c0\u03b1\u03ca\u03ba\u03bf\u03cd \u03bf\u03c1\u03b3\u03b1\u03bd\u03b9\u03c3\u03bc\u03bf\u03cd EURORDIS.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u039c\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b9\u03b4\u03b9\u03b1\u03af\u03c4\u03b5\u03c1\u03b1 \u03c7\u03c1\u03ae\u03c3\u03b9\u03bc\u03b7 \u03c3\u03b5 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03c0\u03bf\u03c5 \u03c7\u03c1\u03b5\u03b9\u03ac\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03cc\u03c1\u03b7\u03c3\u03b7 \u03b3\u03b9\u03b1 \u03c4\u03bf \u03b5\u03bb\u03bb\u03b7\u03bd\u03b9\u03ba\u03cc \u03c0\u03b5\u03c1\u03b9\u03b2\u03ac\u03bb\u03bb\u03bf\u03bd \u03c4\u03c9\u03bd \u03c3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd, \u03b4\u03b9\u03b1\u03c3\u03cd\u03bd\u03b4\u03b5\u03c3\u03b7 \u03bc\u03b5 \u03ac\u03bb\u03bb\u03bf\u03c5\u03c2 \u03c6\u03bf\u03c1\u03b5\u03af\u03c2 \u03ba\u03b1\u03b9 \u03b5\u03ba\u03c0\u03c1\u03bf\u03c3\u03ce\u03c0\u03b7\u03c3\u03b7 \u03b6\u03b7\u03c4\u03b7\u03bc\u03ac\u03c4\u03c9\u03bd \u03c0\u03bf\u03c5 \u03b1\u03c6\u03bf\u03c1\u03bf\u03cd\u03bd \u03c4\u03bf\u03c5\u03c2 \u03c3\u03c0\u03ac\u03bd\u03b9\u03bf\u03c5\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/pespa.gr\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u03a0\u03b1\u03bd\u03b5\u03bb\u03bb\u03ae\u03bd\u03b9\u03b1 \u0388\u03bd\u03c9\u03c3\u03b7 \u03a3\u03c0\u03b1\u03bd\u03af\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd \u2013 \u03a0\u0395\u03a3\u03a0\u0391<\/a><\/p>\n<\/div>\n<\/div>\n\n\n\n<h3 class=\"wp-block-heading\">\u00ab95\u00bb \u2013 \u0395\u03bb\u03bb\u03b7\u03bd\u03b9\u03ba\u03ae \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03bf\u03c5\u03c2 \u03a3\u03c0\u03ac\u03bd\u03b9\u03bf\u03c5\u03c2 \u0391\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2<\/h3>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:40%\">\n<figure class=\"wp-block-image size-full has-lightbox\"><a href=\"https:\/\/rarealliance.gr\" target=\"_blank\" rel=\" noreferrer noopener\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/95.png\" alt=\"\" class=\"wp-image-2560\" srcset=\"https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/95.png 800w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/95-600x600.png 600w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/95-450x450.png 450w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/95-768x768.png 768w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/95-300x300.png 300w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/><\/a><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<p class=\"wp-block-paragraph\">\u0397 <strong>\u00ab95\u00bb, \u0395\u03bb\u03bb\u03b7\u03bd\u03b9\u03ba\u03ae \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03bf\u03c5\u03c2 \u03a3\u03c0\u03ac\u03bd\u03b9\u03bf\u03c5\u03c2 \u0391\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2<\/strong>, \u03b5\u03af\u03bd\u03b1\u03b9 \u03bc\u03b7 \u03ba\u03b5\u03c1\u03b4\u03bf\u03c3\u03ba\u03bf\u03c0\u03b9\u03ba\u03cc \u03c3\u03c9\u03bc\u03b1\u03c4\u03b5\u03af\u03bf \u03c0\u03bf\u03c5 \u03b9\u03b4\u03c1\u03cd\u03b8\u03b7\u03ba\u03b5 \u03c4\u03bf 2019 \u03b1\u03c0\u03cc \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03ba\u03b1\u03b9 \u03b3\u03bf\u03bd\u03b5\u03af\u03c2 \u03c0\u03b1\u03b9\u03b4\u03b9\u03ce\u03bd \u03bc\u03b5 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b5\u03c2 \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03b9\u03c2.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u039f\u03b9 \u03b2\u03b1\u03c3\u03b9\u03ba\u03bf\u03af \u03ac\u03be\u03bf\u03bd\u03b5\u03c2 \u03b4\u03c1\u03ac\u03c3\u03b7\u03c2 \u03c4\u03b7\u03c2 \u03c0\u03b5\u03c1\u03b9\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03bf\u03c5\u03bd \u03c4\u03b7\u03bd \u03b5\u03bd\u03b7\u03bc\u03ad\u03c1\u03c9\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7, \u03c4\u03b7\u03bd \u03b5\u03ba\u03c0\u03b1\u03af\u03b4\u03b5\u03c5\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03b5\u03bd\u03b4\u03c5\u03bd\u03ac\u03bc\u03c9\u03c3\u03b7 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03b9\u03ce\u03bd \u03c5\u03b3\u03b5\u03af\u03b1\u03c2, \u03c4\u03b7\u03bd \u03ad\u03b3\u03ba\u03b1\u03b9\u03c1\u03b7 \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7, \u03c4\u03b7\u03bd \u03b9\u03c3\u03cc\u03c4\u03b9\u03bc\u03b7 \u03c0\u03c1\u03cc\u03c3\u03b2\u03b1\u03c3\u03b7 \u03c3\u03b5 \u03c5\u03c0\u03b7\u03c1\u03b5\u03c3\u03af\u03b5\u03c2 \u03c5\u03b3\u03b5\u03af\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03c0\u03c1\u03bf\u03ce\u03b8\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03c9\u03bd \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ce\u03bd \u03bc\u03b5\u03bb\u03b5\u03c4\u03ce\u03bd.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0393\u03b9\u03b1 \u03c4\u03b9\u03c2 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03bc\u03b5 \u03a3\u03cd\u03bd\u03b4\u03c1\u03bf\u03bc\u03bf Kleefstra \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03ad\u03c3\u03b5\u03b9 \u03c7\u03c1\u03ae\u03c3\u03b9\u03bc\u03bf \u03b5\u03bb\u03bb\u03b7\u03bd\u03b9\u03ba\u03cc \u03c3\u03b7\u03bc\u03b5\u03af\u03bf \u03b1\u03bd\u03b1\u03c6\u03bf\u03c1\u03ac\u03c2 \u03b3\u03b9\u03b1 \u03b6\u03b7\u03c4\u03ae\u03bc\u03b1\u03c4\u03b1 \u03c0\u03bf\u03c5 \u03b1\u03c6\u03bf\u03c1\u03bf\u03cd\u03bd \u03c3\u03c5\u03bd\u03bf\u03bb\u03b9\u03ba\u03ac \u03c4\u03b7 \u03b6\u03c9\u03ae \u03bc\u03b5 \u03bc\u03af\u03b1 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03c0\u03ac\u03b8\u03b7\u03c3\u03b7.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/rarealliance.gr\" target=\"_blank\" rel=\"noreferrer noopener\">\u00ab95\u00bb \u2013 \u0395\u03bb\u03bb\u03b7\u03bd\u03b9\u03ba\u03ae \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03bf\u03c5\u03c2 \u03a3\u03c0\u03ac\u03bd\u03b9\u03bf\u03c5\u03c2 \u0391\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2<\/a><\/p>\n<\/div>\n<\/div>\n\n\n\n<h2 class=\"wp-block-heading\">\u0395\u03c5\u03c1\u03c9\u03c0\u03b1\u03ca\u03ba\u03ac \u03ba\u03b1\u03b9 \u03b4\u03b9\u03b5\u03b8\u03bd\u03ae \u03b4\u03af\u03ba\u03c4\u03c5\u03b1<\/h2>\n\n\n\n<h3 class=\"wp-block-heading\">ERN ITHACA<\/h3>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:40%\">\n<figure class=\"wp-block-image size-full has-lightbox\"><a href=\"https:\/\/ern-ithaca.eu\/\" target=\"_blank\" rel=\" noreferrer noopener\"><img loading=\"lazy\" decoding=\"async\" width=\"500\" height=\"452\" src=\"https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/ernithaca-1.jpg\" alt=\"\" class=\"wp-image-2564\" srcset=\"https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/ernithaca-1.jpg 500w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/ernithaca-1-450x407.jpg 450w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/ernithaca-1-300x271.jpg 300w\" sizes=\"(max-width: 500px) 100vw, 500px\" \/><\/a><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<p class=\"wp-block-paragraph\">\u03a4\u03bf <strong>ERN ITHACA<\/strong> \u03b5\u03af\u03bd\u03b1\u03b9 \u03c4\u03bf \u0395\u03c5\u03c1\u03c9\u03c0\u03b1\u03ca\u03ba\u03cc \u0394\u03af\u03ba\u03c4\u03c5\u03bf \u0391\u03bd\u03b1\u03c6\u03bf\u03c1\u03ac\u03c2 \u03b3\u03b9\u03b1 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03c3\u03c5\u03b3\u03b3\u03b5\u03bd\u03ae \u03c3\u03cd\u03bd\u03b4\u03c1\u03bf\u03bc\u03b1, \u03bd\u03bf\u03b7\u03c4\u03b9\u03ba\u03ae \u03b1\u03bd\u03b1\u03c0\u03b7\u03c1\u03af\u03b1 \u03ba\u03b1\u03b9 \u03ac\u03bb\u03bb\u03b5\u03c2 \u03bd\u03b5\u03c5\u03c1\u03bf\u03b1\u03bd\u03b1\u03c0\u03c4\u03c5\u03be\u03b9\u03b1\u03ba\u03ad\u03c2 \u03b4\u03b9\u03b1\u03c4\u03b1\u03c1\u03b1\u03c7\u03ad\u03c2.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0391\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03ad\u03bd\u03b1 \u03b1\u03c0\u03cc \u03c4\u03b1 \u03b5\u03c0\u03af\u03c3\u03b7\u03bc\u03b1 <strong>European Reference Networks<\/strong> \u03ba\u03b1\u03b9 \u03c3\u03c5\u03bd\u03b4\u03ad\u03b5\u03b9 \u03b5\u03be\u03b5\u03b9\u03b4\u03b9\u03ba\u03b5\u03c5\u03bc\u03ad\u03bd\u03b1 \u03ba\u03ad\u03bd\u03c4\u03c1\u03b1, \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03bf\u03cd\u03c2 \u03ba\u03b1\u03b9 \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03ad\u03c2 \u03b1\u03c0\u03cc \u03b4\u03b9\u03b1\u03c6\u03bf\u03c1\u03b5\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c7\u03ce\u03c1\u03b5\u03c2 \u03c4\u03b7\u03c2 \u0395\u03c5\u03c1\u03ce\u03c0\u03b7\u03c2. \u03a3\u03c4\u03b9\u03c2 \u03b4\u03c1\u03b1\u03c3\u03c4\u03b7\u03c1\u03b9\u03cc\u03c4\u03b7\u03c4\u03ad\u03c2 \u03c4\u03bf\u03c5 \u03c0\u03b5\u03c1\u03b9\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b7 \u03b1\u03bd\u03ac\u03c0\u03c4\u03c5\u03be\u03b7 \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ce\u03bd \u03bf\u03b4\u03b7\u03b3\u03b9\u03ce\u03bd, \u03b7 \u03b5\u03ba\u03c0\u03b1\u03af\u03b4\u03b5\u03c5\u03c3\u03b7, \u03c4\u03b1 registries, \u03b7 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1 \u03ba\u03b1\u03b9 \u03b7 \u03b4\u03c5\u03bd\u03b1\u03c4\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c3\u03c5\u03bd\u03b5\u03c1\u03b3\u03b1\u03c3\u03af\u03b1\u03c2 \u03b5\u03b9\u03b4\u03b9\u03ba\u03ce\u03bd \u03c3\u03b5 \u03c0\u03bf\u03bb\u03cd\u03c0\u03bb\u03bf\u03ba\u03b1 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c4\u03b1\u03c4\u03b9\u03ba\u03ac.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u03a4\u03bf \u03a3\u03cd\u03bd\u03b4\u03c1\u03bf\u03bc\u03bf Kleefstra \u03b2\u03c1\u03af\u03c3\u03ba\u03b5\u03c4\u03b1\u03b9 \u03c3\u03c4\u03bf \u03c0\u03b5\u03b4\u03af\u03bf \u03b5\u03bd\u03b4\u03b9\u03b1\u03c6\u03ad\u03c1\u03bf\u03bd\u03c4\u03bf\u03c2 \u03c4\u03bf\u03c5 ERN ITHACA \u03ba\u03b1\u03b9 \u03b7 \u03b1\u03bd\u03ac\u03c0\u03c4\u03c5\u03be\u03b7 \u03c4\u03c9\u03bd \u03c0\u03c1\u03ce\u03c4\u03c9\u03bd \u03b4\u03b9\u03b5\u03b8\u03bd\u03ce\u03bd evidence-based \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ce\u03bd \u03bf\u03b4\u03b7\u03b3\u03b9\u03ce\u03bd \u03b3\u03b9\u03b1 \u03c4\u03bf KLEFS1 \u03c0\u03c1\u03b1\u03b3\u03bc\u03b1\u03c4\u03bf\u03c0\u03bf\u03b9\u03ae\u03b8\u03b7\u03ba\u03b5 \u03bc\u03ad\u03c3\u03b1 \u03c3\u03b5 \u03b1\u03c5\u03c4\u03cc \u03c4\u03bf \u03b5\u03c5\u03c1\u03cd\u03c4\u03b5\u03c1\u03bf \u03b5\u03c5\u03c1\u03c9\u03c0\u03b1\u03ca\u03ba\u03cc \u03ba\u03b1\u03b9 \u03b4\u03b9\u03b5\u03b8\u03bd\u03ad\u03c2 \u03c0\u03bb\u03b1\u03af\u03c3\u03b9\u03bf.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0393\u03b9\u03b1 \u03c4\u03bf\u03c5\u03c2 \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b5\u03c2 \u03c5\u03b3\u03b5\u03af\u03b1\u03c2:<\/strong> \u03c4\u03bf ERN ITHACA \u03b5\u03af\u03bd\u03b1\u03b9 \u03b9\u03b4\u03b9\u03b1\u03af\u03c4\u03b5\u03c1\u03b1 \u03c7\u03c1\u03ae\u03c3\u03b9\u03bc\u03bf \u03b3\u03b9\u03b1 \u03ba\u03b1\u03c4\u03b5\u03c5\u03b8\u03c5\u03bd\u03c4\u03ae\u03c1\u03b9\u03b5\u03c2 \u03bf\u03b4\u03b7\u03b3\u03af\u03b5\u03c2, \u03b5\u03be\u03b5\u03b9\u03b4\u03b9\u03ba\u03b5\u03c5\u03bc\u03ad\u03bd\u03b1 \u03ba\u03ad\u03bd\u03c4\u03c1\u03b1, \u03b5\u03ba\u03c0\u03b1\u03b9\u03b4\u03b5\u03c5\u03c4\u03b9\u03ba\u03cc \u03c5\u03bb\u03b9\u03ba\u03cc \u03ba\u03b1\u03b9 \u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03bf\u03bd\u03b9\u03ba\u03ae \u03c3\u03c5\u03bd\u03b5\u03c1\u03b3\u03b1\u03c3\u03af\u03b1.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u03a4\u03bf \u03b4\u03af\u03ba\u03c4\u03c5\u03bf \u03b4\u03b5\u03bd \u03bb\u03b5\u03b9\u03c4\u03bf\u03c5\u03c1\u03b3\u03b5\u03af \u03c9\u03c2 \u03b1\u03c0\u03bb\u03ae \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ae \u03c3\u03c4\u03b7\u03bd \u03bf\u03c0\u03bf\u03af\u03b1 \u03b1\u03c5\u03c4\u03bf\u03c0\u03b1\u03c1\u03b1\u03c0\u03ad\u03bc\u03c0\u03b5\u03c4\u03b1\u03b9 \u03ad\u03bd\u03b1\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ae\u03c2. \u0397 \u03c0\u03c1\u03cc\u03c3\u03b2\u03b1\u03c3\u03b7 \u03c3\u03b5 \u03b5\u03be\u03b5\u03b9\u03b4\u03b9\u03ba\u03b5\u03c5\u03bc\u03ad\u03bd\u03b7 \u03b3\u03bd\u03c9\u03bc\u03ac\u03c4\u03b5\u03c5\u03c3\u03b7 \u03c0\u03c1\u03b1\u03b3\u03bc\u03b1\u03c4\u03bf\u03c0\u03bf\u03b9\u03b5\u03af\u03c4\u03b1\u03b9 \u03c3\u03c5\u03bd\u03ae\u03b8\u03c9\u03c2 \u03bc\u03ad\u03c3\u03c9 \u03c4\u03c9\u03bd \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03b5\u03c7\u03cc\u03bd\u03c4\u03c9\u03bd \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03b9\u03ce\u03bd \u03ba\u03b1\u03b9 \u03ba\u03ad\u03bd\u03c4\u03c1\u03c9\u03bd \u03c5\u03b3\u03b5\u03af\u03b1\u03c2.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/ern-ithaca.eu\/\" target=\"_blank\" rel=\"noreferrer noopener\">ERN ITHACA<\/a><\/p>\n<\/div>\n<\/div>\n\n\n\n<h3 class=\"wp-block-heading\">EURORDIS \u2013 Rare Diseases Europe<\/h3>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:40%\">\n<figure class=\"wp-block-image size-full has-lightbox\"><a href=\"https:\/\/www.eurordis.org\" target=\"_blank\" rel=\" noreferrer noopener\"><img loading=\"lazy\" decoding=\"async\" width=\"400\" height=\"400\" src=\"http:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/eurordis.png\" alt=\"\" class=\"wp-image-2565\" srcset=\"https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/eurordis.png 400w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/eurordis-300x300.png 300w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/><\/a><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<p class=\"wp-block-paragraph\">\u0397 <strong>EURORDIS \u2013 Rare Diseases Europe<\/strong> \u03b5\u03af\u03bd\u03b1\u03b9 \u03bc\u03af\u03b1 \u03bc\u03b5\u03b3\u03ac\u03bb\u03b7 \u03b5\u03c5\u03c1\u03c9\u03c0\u03b1\u03ca\u03ba\u03ae, \u03bc\u03b7 \u03ba\u03b5\u03c1\u03b4\u03bf\u03c3\u03ba\u03bf\u03c0\u03b9\u03ba\u03ae \u03c3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 \u03bf\u03c1\u03b3\u03b1\u03bd\u03ce\u03c3\u03b5\u03c9\u03bd \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03bc\u03b5 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b5\u03c2 \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03b9\u03c2.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u03a3\u03c5\u03bd\u03b4\u03ad\u03b5\u03b9 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b5\u03c2 \u03b1\u03c0\u03cc 1.000 \u03bf\u03c1\u03b3\u03b1\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03b1\u03c0\u03cc \u03b4\u03b5\u03ba\u03ac\u03b4\u03b5\u03c2 \u03c7\u03ce\u03c1\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03b5\u03c1\u03b3\u03ac\u03b6\u03b5\u03c4\u03b1\u03b9 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b5\u03bd\u03b4\u03c5\u03bd\u03ac\u03bc\u03c9\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03c6\u03c9\u03bd\u03ae\u03c2 \u03c4\u03c9\u03bd \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd, \u03c4\u03b7 \u03b2\u03b5\u03bb\u03c4\u03af\u03c9\u03c3\u03b7 \u03c4\u03c9\u03bd \u03c0\u03bf\u03bb\u03b9\u03c4\u03b9\u03ba\u03ce\u03bd \u03b3\u03b9\u03b1 \u03c4\u03b9\u03c2 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b5\u03c2 \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03b9\u03c2, \u03c4\u03b7\u03bd \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1, \u03c4\u03b7\u03bd \u03c0\u03c1\u03cc\u03c3\u03b2\u03b1\u03c3\u03b7 \u03c3\u03b5 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b7 \u03c3\u03c5\u03bd\u03b5\u03c1\u03b3\u03b1\u03c3\u03af\u03b1 \u03c3\u03b5 \u03b5\u03c5\u03c1\u03c9\u03c0\u03b1\u03ca\u03ba\u03cc \u03b5\u03c0\u03af\u03c0\u03b5\u03b4\u03bf.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0394\u03b5\u03bd \u03b5\u03af\u03bd\u03b1\u03b9 \u03bf\u03c1\u03b3\u03b1\u03bd\u03b9\u03c3\u03bc\u03cc\u03c2 \u03b5\u03b9\u03b4\u03b9\u03ba\u03ac \u03b3\u03b9\u03b1 \u03c4\u03bf Kleefstra, \u03b1\u03bb\u03bb\u03ac \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03ad\u03bd\u03b1\u03bd \u03b1\u03c0\u03cc \u03c4\u03bf\u03c5\u03c2 \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03cc\u03c4\u03b5\u03c1\u03bf\u03c5\u03c2 \u03b5\u03c5\u03c1\u03c9\u03c0\u03b1\u03ca\u03ba\u03bf\u03cd\u03c2 \u03c6\u03bf\u03c1\u03b5\u03af\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03bf \u03b5\u03c5\u03c1\u03cd\u03c4\u03b5\u03c1\u03bf \u03bf\u03b9\u03ba\u03bf\u03c3\u03cd\u03c3\u03c4\u03b7\u03bc\u03b1 \u03c4\u03c9\u03bd \u03c3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.eurordis.org\" target=\"_blank\" rel=\"noreferrer noopener\">EURORDIS \u2013 Rare Diseases Europe<\/a><\/p>\n<\/div>\n<\/div>\n\n\n\n<h3 class=\"wp-block-heading\">Orphanet<\/h3>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:40%\">\n<figure class=\"wp-block-image size-full has-lightbox\"><a href=\"https:\/\/www.orpha.net\/en\/disease\/detail\/261494\" target=\"_blank\" rel=\" noreferrer noopener\"><img loading=\"lazy\" decoding=\"async\" width=\"447\" height=\"447\" src=\"http:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/orphanet.jpg\" alt=\"\" class=\"wp-image-2567\" srcset=\"https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/orphanet.jpg 447w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/orphanet-300x300.jpg 300w\" sizes=\"(max-width: 447px) 100vw, 447px\" \/><\/a><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<p class=\"wp-block-paragraph\">\u03a4\u03bf <strong>Orphanet<\/strong> \u03b5\u03af\u03bd\u03b1\u03b9 \u03b4\u03b9\u03b5\u03b8\u03bd\u03ae\u03c2 \u03c0\u03b7\u03b3\u03ae \u03b1\u03bd\u03b1\u03c6\u03bf\u03c1\u03ac\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b9\u03c2 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b5\u03c2 \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03b9\u03c2 \u03ba\u03b1\u03b9 \u03b4\u03b9\u03b1\u03b8\u03ad\u03c4\u03b5\u03b9 \u03be\u03b5\u03c7\u03c9\u03c1\u03b9\u03c3\u03c4\u03ae \u03ba\u03b1\u03c4\u03b1\u03c7\u03ce\u03c1\u03b9\u03c3\u03b7 \u03b3\u03b9\u03b1 \u03c4\u03bf \u03a3\u03cd\u03bd\u03b4\u03c1\u03bf\u03bc\u03bf Kleefstra, <strong>ORPHA:261494<\/strong>.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0397 \u03c3\u03b5\u03bb\u03af\u03b4\u03b1 \u03c3\u03c5\u03b3\u03ba\u03b5\u03bd\u03c4\u03c1\u03ce\u03bd\u03b5\u03b9 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03af\u03b5\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03c0\u03ac\u03b8\u03b7\u03c3\u03b7, \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ac \u03b4\u03b5\u03b4\u03bf\u03bc\u03ad\u03bd\u03b1, \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ac \u03c7\u03b1\u03c1\u03b1\u03ba\u03c4\u03b7\u03c1\u03b9\u03c3\u03c4\u03b9\u03ba\u03ac, \u03b4\u03b9\u03b1\u03b3\u03bd\u03c9\u03c3\u03c4\u03b9\u03ba\u03ad\u03c2 \u03b5\u03be\u03b5\u03c4\u03ac\u03c3\u03b5\u03b9\u03c2, \u03ba\u03ad\u03bd\u03c4\u03c1\u03b1 \u03b5\u03bc\u03c0\u03b5\u03b9\u03c1\u03bf\u03b3\u03bd\u03c9\u03bc\u03bf\u03c3\u03cd\u03bd\u03b7\u03c2, \u03bf\u03c1\u03b3\u03b1\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd, registries, \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03b9\u03ba\u03ac \u03c0\u03c1\u03bf\u03b3\u03c1\u03ac\u03bc\u03bc\u03b1\u03c4\u03b1 \u03ba\u03b1\u03b9 \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ad\u03c2 \u03bf\u03b4\u03b7\u03b3\u03af\u03b5\u03c2.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0395\u03af\u03bd\u03b1\u03b9 \u03b9\u03b4\u03b9\u03b1\u03af\u03c4\u03b5\u03c1\u03b1 \u03c7\u03c1\u03ae\u03c3\u03b9\u03bc\u03b7 \u03c4\u03cc\u03c3\u03bf \u03b3\u03b9\u03b1 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03cc\u03c3\u03bf \u03ba\u03b1\u03b9 \u03b3\u03b9\u03b1 \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b5\u03c2 \u03c5\u03b3\u03b5\u03af\u03b1\u03c2 \u03c0\u03bf\u03c5 \u03c7\u03c1\u03b5\u03b9\u03ac\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03bc\u03b9\u03b1 \u03bf\u03c1\u03b3\u03b1\u03bd\u03c9\u03bc\u03ad\u03bd\u03b7 \u03b4\u03b9\u03b5\u03b8\u03bd\u03ae \u03c0\u03b7\u03b3\u03ae \u03b3\u03b9\u03b1 \u03c4\u03b9\u03c2 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b5\u03c2 \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03b9\u03c2.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.orpha.net\/en\/disease\/detail\/261494\" target=\"_blank\" rel=\"noreferrer noopener\">Orphanet \u2013 Kleefstra syndrome ORPHA:261494<\/a><\/p>\n<\/div>\n<\/div>\n\n\n\n<h3 class=\"wp-block-heading\">GeneReviews \u2013 Kleefstra Syndrome<\/h3>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:40%\">\n<figure class=\"wp-block-image size-full has-lightbox\"><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/books\/NBK47079\/\" target=\"_blank\" rel=\" noreferrer noopener\"><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"140\" src=\"http:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/genereviews.jpg\" alt=\"\" class=\"wp-image-2568\"\/><\/a><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<p class=\"wp-block-paragraph\">\u03a4\u03bf <strong>GeneReviews<\/strong> \u03c4\u03bf\u03c5 National Center for Biotechnology Information \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03bc\u03af\u03b1 \u03b1\u03c0\u03cc \u03c4\u03b9\u03c2 \u03b2\u03b1\u03c3\u03b9\u03ba\u03ad\u03c2 \u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03bf\u03bd\u03b9\u03ba\u03ad\u03c2 \u03b1\u03bd\u03b1\u03c3\u03ba\u03bf\u03c0\u03ae\u03c3\u03b5\u03b9\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03bf \u03a3\u03cd\u03bd\u03b4\u03c1\u03bf\u03bc\u03bf Kleefstra.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u03a0\u03b5\u03c1\u03b9\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03b5\u03b9 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03af\u03b5\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7, \u03c4\u03bf EHMT1, \u03c4\u03b9\u03c2 \u03b4\u03b9\u03b1\u03b3\u03c1\u03b1\u03c6\u03ad\u03c2 9q34.3, \u03c4\u03b1 \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ac \u03c7\u03b1\u03c1\u03b1\u03ba\u03c4\u03b7\u03c1\u03b9\u03c3\u03c4\u03b9\u03ba\u03ac, \u03c4\u03b7 \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ae \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03b5\u03c5\u03c4\u03b9\u03ba\u03ae \u03ba\u03b1\u03b9 \u03c4\u03b7 \u03b4\u03b9\u03b1\u03c7\u03b5\u03af\u03c1\u03b9\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03c0\u03ac\u03b8\u03b7\u03c3\u03b7\u03c2. \u0397 \u03c4\u03c1\u03ad\u03c7\u03bf\u03c5\u03c3\u03b1 \u03ad\u03ba\u03b4\u03bf\u03c3\u03b7 \u03ad\u03c7\u03b5\u03b9 \u03b1\u03bd\u03b1\u03b8\u03b5\u03c9\u03c1\u03b7\u03b8\u03b5\u03af \u03c4\u03bf 2023 \u03ba\u03b1\u03b9 \u03ad\u03c7\u03b5\u03b9 \u03c3\u03c5\u03b3\u03b3\u03c1\u03b1\u03c6\u03b5\u03af \u03b1\u03c0\u03cc \u03c4\u03b9\u03c2 Tjitske Kleefstra \u03ba\u03b1\u03b9 Nicole de Leeuw.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0393\u03b9\u03b1 \u03c4\u03b9\u03c2 \u03c0\u03bb\u03ad\u03bf\u03bd \u03c0\u03c1\u03cc\u03c3\u03c6\u03b1\u03c4\u03b5\u03c2 \u03c3\u03c5\u03c3\u03c4\u03ac\u03c3\u03b5\u03b9\u03c2 \u03c0\u03b1\u03c1\u03b1\u03ba\u03bf\u03bb\u03bf\u03cd\u03b8\u03b7\u03c3\u03b7\u03c2 \u03c0\u03c1\u03ad\u03c0\u03b5\u03b9 \u03bd\u03b1 \u03c7\u03c1\u03b7\u03c3\u03b9\u03bc\u03bf\u03c0\u03bf\u03b9\u03b5\u03af\u03c4\u03b1\u03b9 \u03c3\u03b5 \u03c3\u03c5\u03bd\u03b4\u03c5\u03b1\u03c3\u03bc\u03cc \u03bc\u03b5 \u03c4\u03b9\u03c2 <strong>\u0394\u03b9\u03b5\u03b8\u03bd\u03b5\u03af\u03c2 \u039a\u03bb\u03b9\u03bd\u03b9\u03ba\u03ad\u03c2 \u039f\u03b4\u03b7\u03b3\u03af\u03b5\u03c2 \u03c4\u03bf\u03c5 2026<\/strong>.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/books\/NBK47079\/\" target=\"_blank\" rel=\"noreferrer noopener\">GeneReviews \u2013 Kleefstra Syndrome<\/a><\/p>\n<\/div>\n<\/div>\n\n\n\n<h2 class=\"wp-block-heading\">\u0388\u03c1\u03b5\u03c5\u03bd\u03b1, registries \u03ba\u03b1\u03b9 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae \u03c4\u03b7\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2<\/h2>\n\n\n\n<h3 class=\"wp-block-heading\">Kleefstra Syndrome Worldwide Map<\/h3>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:40%\">\n<figure class=\"wp-block-image size-full has-lightbox\"><a href=\"https:\/\/www.kleefstraworldmap.org\" target=\"_blank\" rel=\" noreferrer noopener\"><img loading=\"lazy\" decoding=\"async\" width=\"579\" height=\"106\" src=\"http:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/worldmap-1.png\" alt=\"\" class=\"wp-image-2569\" srcset=\"https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/worldmap-1.png 579w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/worldmap-1-450x82.png 450w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/worldmap-1-300x55.png 300w\" sizes=\"(max-width: 579px) 100vw, 579px\" \/><\/a><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<p class=\"wp-block-paragraph\">\u039f <strong>\u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03bf\u03c2 \u03a7\u03ac\u03c1\u03c4\u03b7\u03c2 Kleefstra<\/strong> \u03b4\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03ae\u03b8\u03b7\u03ba\u03b5 \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03ba\u03ac\u03bd\u03b5\u03b9 \u03c0\u03b9\u03bf \u03bf\u03c1\u03b1\u03c4\u03ae \u03c4\u03b7 \u03b4\u03b9\u03b5\u03b8\u03bd\u03ae \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03c3\u03c5\u03bd\u03b4\u03ad\u03c3\u03b5\u03b9 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03b1\u03c0\u03cc \u03b4\u03b9\u03b1\u03c6\u03bf\u03c1\u03b5\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c7\u03ce\u03c1\u03b5\u03c2.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u039f\u03b9 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03bd \u03bd\u03b1 \u03b5\u03b3\u03b3\u03c1\u03ac\u03c8\u03bf\u03c5\u03bd \u03ad\u03bd\u03b1 \u03ac\u03c4\u03bf\u03bc\u03bf \u03bc\u03b5 Kleefstra \u03c3\u03c4\u03bf\u03bd \u03c7\u03ac\u03c1\u03c4\u03b7, \u03c3\u03c5\u03bc\u03b2\u03ac\u03bb\u03bb\u03bf\u03bd\u03c4\u03b1\u03c2 \u03c3\u03c4\u03b7\u03bd \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03b7 \u03b5\u03b9\u03ba\u03cc\u03bd\u03b1 \u03c4\u03b7\u03c2 \u03b3\u03b5\u03c9\u03b3\u03c1\u03b1\u03c6\u03b9\u03ba\u03ae\u03c2 \u03ba\u03b1\u03c4\u03b1\u03bd\u03bf\u03bc\u03ae\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03bf\u03c5 \u03bc\u03b5\u03b3\u03ad\u03b8\u03bf\u03c5\u03c2 \u03c4\u03b7\u03c2 \u03b3\u03bd\u03c9\u03c3\u03c4\u03ae\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u03a3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03ae \u03b4\u03b9\u03b5\u03c5\u03ba\u03c1\u03af\u03bd\u03b9\u03c3\u03b7:<\/strong> \u03bf \u03b1\u03c1\u03b9\u03b8\u03bc\u03cc\u03c2 \u03c4\u03c9\u03bd \u03b5\u03b3\u03b3\u03b5\u03b3\u03c1\u03b1\u03bc\u03bc\u03ad\u03bd\u03c9\u03bd \u03b1\u03c4\u03cc\u03bc\u03c9\u03bd \u03c3\u03c4\u03bf\u03bd \u03c7\u03ac\u03c1\u03c4\u03b7 \u03b4\u03b5\u03bd \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03b5\u03c0\u03af\u03c3\u03b7\u03bc\u03b7 \u03b5\u03ba\u03c4\u03af\u03bc\u03b7\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03c0\u03c1\u03b1\u03b3\u03bc\u03b1\u03c4\u03b9\u03ba\u03bf\u03cd \u03b5\u03c0\u03b9\u03c0\u03bf\u03bb\u03b1\u03c3\u03bc\u03bf\u03cd \u03c4\u03bf\u03c5 \u03a3\u03c5\u03bd\u03b4\u03c1\u03cc\u03bc\u03bf\u03c5 Kleefstra. \u0394\u03b5\u03bd \u03ad\u03c7\u03bf\u03c5\u03bd \u03b5\u03b3\u03b3\u03c1\u03b1\u03c6\u03b5\u03af \u03cc\u03bb\u03b1 \u03c4\u03b1 \u03b4\u03b9\u03b1\u03b3\u03bd\u03c9\u03c3\u03bc\u03ad\u03bd\u03b1 \u03ac\u03c4\u03bf\u03bc\u03b1 \u03c0\u03b1\u03b3\u03ba\u03bf\u03c3\u03bc\u03af\u03c9\u03c2 \u03ba\u03b1\u03b9 \u03bf \u03c7\u03ac\u03c1\u03c4\u03b7\u03c2 \u03b4\u03b5\u03bd \u03b1\u03bd\u03c4\u03b9\u03ba\u03b1\u03b8\u03b9\u03c3\u03c4\u03ac \u03ad\u03bd\u03b1 \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03cc registry \u03ae \u03bc\u03af\u03b1 \u03b5\u03c0\u03b9\u03b4\u03b7\u03bc\u03b9\u03bf\u03bb\u03bf\u03b3\u03b9\u03ba\u03ae \u03bc\u03b5\u03bb\u03ad\u03c4\u03b7.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.kleefstraworldmap.org\" target=\"_blank\" rel=\"noreferrer noopener\">Kleefstra Syndrome Worldwide Map<\/a><\/p>\n<\/div>\n<\/div>\n\n\n\n<h3 class=\"wp-block-heading\">RARE-X<\/h3>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:40%\">\n<figure class=\"wp-block-image size-full has-lightbox\"><a href=\"https:\/\/rare-x.org\" target=\"_blank\" rel=\" noreferrer noopener\"><img loading=\"lazy\" decoding=\"async\" width=\"500\" height=\"175\" src=\"http:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/RARE-X-Logo-GG-500.webp\" alt=\"\" class=\"wp-image-2570\" srcset=\"https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/RARE-X-Logo-GG-500.webp 500w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/RARE-X-Logo-GG-500-450x158.webp 450w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/RARE-X-Logo-GG-500-300x105.webp 300w\" sizes=\"(max-width: 500px) 100vw, 500px\" \/><\/a><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<p class=\"wp-block-paragraph\">\u03a4\u03bf <strong>RARE-X<\/strong>, \u03c0\u03c1\u03cc\u03b3\u03c1\u03b1\u03bc\u03bc\u03b1 \u03c4\u03bf\u03c5 Global Genes, \u03b5\u03af\u03bd\u03b1\u03b9 \u03bc\u03b9\u03b1 \u03b4\u03b9\u03b5\u03b8\u03bd\u03ae\u03c2 \u03c0\u03bb\u03b1\u03c4\u03c6\u03cc\u03c1\u03bc\u03b1 \u03c3\u03c5\u03bb\u03bb\u03bf\u03b3\u03ae\u03c2 \u03ba\u03b1\u03b9 \u03b4\u03b9\u03b1\u03bc\u03bf\u03b9\u03c1\u03b1\u03c3\u03bc\u03bf\u03cd \u03b4\u03b5\u03b4\u03bf\u03bc\u03ad\u03bd\u03c9\u03bd \u03b3\u03b9\u03b1 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b5\u03c2 \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03b9\u03c2.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u03a3\u03c4\u03cc\u03c7\u03bf\u03c2 \u03c4\u03b7\u03c2 \u03b5\u03af\u03bd\u03b1\u03b9 \u03bd\u03b1 \u03b5\u03c0\u03b9\u03c4\u03c1\u03ad\u03c0\u03b5\u03b9 \u03c3\u03b5 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03ba\u03b1\u03b9 \u03c6\u03c1\u03bf\u03bd\u03c4\u03b9\u03c3\u03c4\u03ad\u03c2 \u03bd\u03b1 \u03c3\u03c5\u03bc\u03b2\u03ac\u03bb\u03bb\u03bf\u03c5\u03bd \u03bc\u03b5 \u03b4\u03b5\u03b4\u03bf\u03bc\u03ad\u03bd\u03b1 \u03c0\u03bf\u03c5 \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03bd, \u03c5\u03c0\u03cc \u03ba\u03b1\u03c4\u03ac\u03bb\u03bb\u03b7\u03bb\u03b5\u03c2 \u03b4\u03b9\u03b1\u03b4\u03b9\u03ba\u03b1\u03c3\u03af\u03b5\u03c2 \u03c0\u03c1\u03cc\u03c3\u03b2\u03b1\u03c3\u03b7\u03c2, \u03bd\u03b1 \u03c7\u03c1\u03b7\u03c3\u03b9\u03bc\u03bf\u03c0\u03bf\u03b9\u03b7\u03b8\u03bf\u03cd\u03bd \u03b1\u03c0\u03cc \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03ad\u03c2, \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03bf\u03cd\u03c2 \u03ba\u03b1\u03b9 \u03c6\u03bf\u03c1\u03b5\u03af\u03c2 \u03b1\u03bd\u03ac\u03c0\u03c4\u03c5\u03be\u03b7\u03c2 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03b9\u03ce\u03bd.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u03a4\u03bf RARE-X \u03c0\u03b5\u03c1\u03b9\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03b5\u03c4\u03b1\u03b9 \u03c3\u03c4\u03b9\u03c2 \u03c0\u03bb\u03b1\u03c4\u03c6\u03cc\u03c1\u03bc\u03b5\u03c2 \u03c3\u03c5\u03bb\u03bb\u03bf\u03b3\u03ae\u03c2 \u03b4\u03b5\u03b4\u03bf\u03bc\u03ad\u03bd\u03c9\u03bd \u03c0\u03bf\u03c5 \u03c0\u03c1\u03bf\u03b2\u03ac\u03bb\u03bb\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b1\u03c0\u03cc \u03c4\u03b7 \u03b4\u03b9\u03b5\u03b8\u03bd\u03ae \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 Kleefstra.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/rare-x.org\" target=\"_blank\" rel=\"noreferrer noopener\">RARE-X<\/a><\/p>\n<\/div>\n<\/div>\n\n\n\n<h3 class=\"wp-block-heading\">GenIDA<\/h3>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:40%\">\n<figure class=\"wp-block-image size-full has-lightbox\"><a href=\"https:\/\/genida.unistra.fr\" target=\"_blank\" rel=\" noreferrer noopener\"><img loading=\"lazy\" decoding=\"async\" width=\"869\" height=\"230\" src=\"http:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/genIDA.jpg\" alt=\"\" class=\"wp-image-2571\" srcset=\"https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/genIDA.jpg 869w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/genIDA-600x159.jpg 600w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/genIDA-450x119.jpg 450w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/genIDA-768x203.jpg 768w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/genIDA-300x79.jpg 300w, https:\/\/kleefstrasyndrome.com\/wp-content\/uploads\/2026\/08\/genIDA-850x225.jpg 850w\" sizes=\"(max-width: 869px) 100vw, 869px\" \/><\/a><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<p class=\"wp-block-paragraph\">\u03a4\u03bf <strong>GenIDA<\/strong> \u03b5\u03af\u03bd\u03b1\u03b9 \u03b4\u03b9\u03b5\u03b8\u03bd\u03ae\u03c2 \u03c0\u03bb\u03b1\u03c4\u03c6\u03cc\u03c1\u03bc\u03b1 \u03c3\u03c5\u03bb\u03bb\u03bf\u03b3\u03ae\u03c2 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03b9\u03ce\u03bd \u03c0\u03bf\u03c5 \u03b1\u03bd\u03b1\u03c6\u03ad\u03c1\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b1\u03c0\u03cc \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03c6\u03c1\u03bf\u03bd\u03c4\u03b9\u03c3\u03c4\u03ad\u03c2 \u03b1\u03c4\u03cc\u03bc\u03c9\u03bd \u03bc\u03b5 \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ad\u03c2 \u03bc\u03bf\u03c1\u03c6\u03ad\u03c2 \u03bd\u03bf\u03b7\u03c4\u03b9\u03ba\u03ae\u03c2 \u03b1\u03bd\u03b1\u03c0\u03b7\u03c1\u03af\u03b1\u03c2, \u03b1\u03c5\u03c4\u03b9\u03c3\u03bc\u03bf\u03cd \u03ba\u03b1\u03b9 \u03b5\u03c0\u03b9\u03bb\u03b7\u03c8\u03af\u03b1\u03c2.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0397 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c4\u03bf\u03c5 \u03a3\u03c5\u03bd\u03b4\u03c1\u03cc\u03bc\u03bf\u03c5 Kleefstra \u03ad\u03c7\u03b5\u03b9 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ac\u03c3\u03c7\u03b5\u03b9 \u03c3\u03c4\u03b7 \u03c3\u03c5\u03bb\u03bb\u03bf\u03b3\u03ae \u03b4\u03b5\u03b4\u03bf\u03bc\u03ad\u03bd\u03c9\u03bd \u03bc\u03ad\u03c3\u03c9 \u03c4\u03bf\u03c5 GenIDA \u03ba\u03b1\u03b9 \u03c4\u03b1 \u03b4\u03b5\u03b4\u03bf\u03bc\u03ad\u03bd\u03b1 \u03b1\u03c5\u03c4\u03ac \u03ad\u03c7\u03bf\u03c5\u03bd \u03c7\u03c1\u03b7\u03c3\u03b9\u03bc\u03bf\u03c0\u03bf\u03b9\u03b7\u03b8\u03b5\u03af \u03c3\u03b5 \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03b9\u03ba\u03ad\u03c2 \u03b1\u03bd\u03b1\u03bb\u03cd\u03c3\u03b5\u03b9\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03b7 \u03ba\u03b1\u03c4\u03b1\u03bd\u03cc\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03c0\u03ac\u03b8\u03b7\u03c3\u03b7\u03c2.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0397 \u03b4\u03b9\u03b1\u03b8\u03b5\u03c3\u03b9\u03bc\u03cc\u03c4\u03b7\u03c4\u03b1 \u03ba\u03b1\u03b9 \u03b7 \u03c4\u03b5\u03c7\u03bd\u03b9\u03ba\u03ae \u03bb\u03b5\u03b9\u03c4\u03bf\u03c5\u03c1\u03b3\u03af\u03b1 \u03c4\u03c9\u03bd registries \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03bc\u03b5\u03c4\u03b1\u03b2\u03ac\u03bb\u03bb\u03b5\u03c4\u03b1\u03b9 \u03bc\u03b5 \u03c4\u03b7\u03bd \u03c0\u03ac\u03c1\u03bf\u03b4\u03bf \u03c4\u03bf\u03c5 \u03c7\u03c1\u03cc\u03bd\u03bf\u03c5, \u03b5\u03c0\u03bf\u03bc\u03ad\u03bd\u03c9\u03c2 \u03c0\u03c1\u03b9\u03bd \u03b1\u03c0\u03cc \u03bf\u03c0\u03bf\u03b9\u03b1\u03b4\u03ae\u03c0\u03bf\u03c4\u03b5 \u03b5\u03b3\u03b3\u03c1\u03b1\u03c6\u03ae \u03c3\u03c5\u03bd\u03b9\u03c3\u03c4\u03ac\u03c4\u03b1\u03b9 \u03bd\u03b1 \u03b5\u03bb\u03ad\u03b3\u03c7\u03b5\u03c4\u03b1\u03b9 \u03b7 \u03c4\u03c1\u03ad\u03c7\u03bf\u03c5\u03c3\u03b1 \u03ba\u03b1\u03c4\u03ac\u03c3\u03c4\u03b1\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03c0\u03bb\u03b1\u03c4\u03c6\u03cc\u03c1\u03bc\u03b1\u03c2.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/genida.unistra.fr\" target=\"_blank\" rel=\"noreferrer noopener\">GenIDA<\/a><\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group study-significant\"><div class=\"wp-block-group__inner-container is-layout-constrained wp-block-group-is-layout-constrained\">\n<h3 class=\"wp-block-heading\">\u03a3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03ae \u03c3\u03b7\u03bc\u03b5\u03af\u03c9\u03c3\u03b7<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u039f\u03b9 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03af\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03bf\u03b9 \u03c3\u03cd\u03bd\u03b4\u03b5\u03c3\u03bc\u03bf\u03b9 \u03b1\u03c5\u03c4\u03ae\u03c2 \u03c4\u03b7\u03c2 \u03c3\u03b5\u03bb\u03af\u03b4\u03b1\u03c2 \u03c0\u03b1\u03c1\u03ad\u03c7\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b1\u03c0\u03bf\u03ba\u03bb\u03b5\u03b9\u03c3\u03c4\u03b9\u03ba\u03ac \u03b3\u03b9\u03b1 \u03b5\u03bd\u03b7\u03bc\u03b5\u03c1\u03c9\u03c4\u03b9\u03ba\u03bf\u03cd\u03c2 \u03c3\u03ba\u03bf\u03c0\u03bf\u03cd\u03c2. \u0394\u03b5\u03bd \u03b1\u03bd\u03c4\u03b9\u03ba\u03b1\u03b8\u03b9\u03c3\u03c4\u03bf\u03cd\u03bd \u03c4\u03b7\u03bd \u03b5\u03be\u03b1\u03c4\u03bf\u03bc\u03b9\u03ba\u03b5\u03c5\u03bc\u03ad\u03bd\u03b7 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ae \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03ae, \u03c4\u03b7 \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ae \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03b5\u03c5\u03c4\u03b9\u03ba\u03ae \u03ae \u03c4\u03b7\u03bd \u03b1\u03be\u03b9\u03bf\u03bb\u03cc\u03b3\u03b7\u03c3\u03b7 \u03b1\u03c0\u03cc \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b1 \u03c5\u03b3\u03b5\u03af\u03b1\u03c2.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u039f\u03b9 \u03b4\u03c1\u03b1\u03c3\u03c4\u03b7\u03c1\u03b9\u03cc\u03c4\u03b7\u03c4\u03b5\u03c2 \u03c4\u03c9\u03bd \u03c6\u03bf\u03c1\u03ad\u03c9\u03bd, \u03b7 \u03b4\u03b9\u03b1\u03b8\u03b5\u03c3\u03b9\u03bc\u03cc\u03c4\u03b7\u03c4\u03b1 \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03b9\u03ba\u03ce\u03bd \u03bc\u03b5\u03bb\u03b5\u03c4\u03ce\u03bd \u03ba\u03b1\u03b9 \u03b7 \u03bb\u03b5\u03b9\u03c4\u03bf\u03c5\u03c1\u03b3\u03af\u03b1 registries \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03bc\u03b5\u03c4\u03b1\u03b2\u03ac\u03bb\u03bb\u03bf\u03bd\u03c4\u03b1\u03b9. \u0393\u03b9\u03b1 \u03c4\u03b9\u03c2 \u03c0\u03b9\u03bf \u03c0\u03c1\u03cc\u03c3\u03c6\u03b1\u03c4\u03b5\u03c2 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03af\u03b5\u03c2 \u03bd\u03b1 \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03b5\u03cd\u03b5\u03c3\u03c4\u03b5 \u03c0\u03ac\u03bd\u03c4\u03bf\u03c4\u03b5 \u03c4\u03b7\u03bd \u03b5\u03c0\u03af\u03c3\u03b7\u03bc\u03b7 \u03b9\u03c3\u03c4\u03bf\u03c3\u03b5\u03bb\u03af\u03b4\u03b1 \u03c4\u03bf\u03c5 \u03b1\u03bd\u03c4\u03af\u03c3\u03c4\u03bf\u03b9\u03c7\u03bf\u03c5 \u03bf\u03c1\u03b3\u03b1\u03bd\u03b9\u03c3\u03bc\u03bf\u03cd.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u03a4\u03b5\u03bb\u03b5\u03c5\u03c4\u03b1\u03af\u03b1 \u03b5\u03bd\u03b7\u03bc\u03ad\u03c1\u03c9\u03c3\u03b7: \u0391\u03cd\u03b3\u03bf\u03c5\u03c3\u03c4\u03bf\u03c2 2026<\/p>\n<\/div><\/div>\n<\/div><\/div>\n","protected":false},"excerpt":{"rendered":"<p>\u0397 \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7 \u03bc\u03b9\u03b1\u03c2 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1\u03c2 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