{"id":2047,"date":"2015-03-08T08:46:55","date_gmt":"2015-03-08T06:46:55","guid":{"rendered":"https:\/\/kleefstrasyndrome.com\/?p=2047"},"modified":"2026-08-19T15:19:34","modified_gmt":"2026-08-19T13:19:34","slug":"conference-sur-le-syndrome-de-kleefstra","status":"publish","type":"post","link":"https:\/\/kleefstrasyndrome.com\/fr\/conference-on-kleefstra-syndrome\/","title":{"rendered":"Rencontre internationale sur le syndrome de Kleefstra \u00e0 Coventry"},"content":{"rendered":"<p class=\"wp-block-paragraph\">Le <strong>Du 14 au 16 ao\u00fbt 2015<\/strong> cette manifestation aura lieu \u00e0 l&#x27;h\u00f4tel <strong>Novotel \u00e0 Coventry, au Royaume-Uni<\/strong> une nouvelle rencontre internationale consacr\u00e9e au syndrome de Kleefstra.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Cette rencontre constitue une occasion importante pour les familles et les personnes concern\u00e9es par le syndrome de Kleefstra de se rencontrer, d&#x27;\u00e9changer leurs exp\u00e9riences et de s&#x27;informer sur les questions li\u00e9es \u00e0 ce syndrome.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">La journ\u00e9e principale consacr\u00e9e aux pr\u00e9sentations et aux activit\u00e9s aura lieu le <strong>Samedi 15 ao\u00fbt<\/strong>. Parmi les intervenants confirm\u00e9s figure <strong>Prof. Chris Oliver<\/strong>, qui poss\u00e8de une solide exp\u00e9rience en mati\u00e8re de recherche sur les manifestations comportementales des personnes atteintes de syndromes g\u00e9n\u00e9tiques, ainsi que la <strong>Cindy Jo-Morison<\/strong>. On s&#x27;attend \u00e9galement \u00e0 ce que <strong>Dr Tjitske Kleefstra<\/strong>, dont la g\u00e9n\u00e9ticienne a vu son nom associ\u00e9 \u00e0 la d\u00e9couverte et \u00e0 l&#x27;\u00e9tude de ce syndrome. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Au-del\u00e0 de son volet scientifique et informatif, cette rencontre permettra aux familles de passer du temps ensemble et de nouer des liens avec d\u2019autres familles issues de diff\u00e9rents pays qui partagent des exp\u00e9riences similaires. Pour une maladie g\u00e9n\u00e9tique aussi rare, de telles rencontres internationales rev\u00eatent une importance particuli\u00e8re, car elles rapprochent les familles, les chercheurs et les professionnels qui s&#x27;occupent du syndrome de Kleefstra.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Pour r\u00e9server une chambre ou un espace lors du congr\u00e8s, vous pouvez contacter l&#x27;h\u00f4tel Novotel au 024 7636 5000 et demander \u00e0 parler \u00e0 Sheila afin de faire uneune r\u00e9servation pour le congr\u00e8s consacr\u00e9 au syndrome de Kleefstra qui se tiendra en ao\u00fbt. Une r\u00e9servation a d\u00e9j\u00e0 \u00e9t\u00e9 effectu\u00e9e pour 10 chambres le vendredi 14 ao\u00fbt, 20 chambres pour le samedi 15 ao\u00fbt et 5 chambres pour le dimanche 16 ao\u00fbt.<br><\/p>","protected":false},"excerpt":{"rendered":"<p>Du 14 au 16 ao\u00fbt 2015, une manifestation se tiendra \u00e0 l&#x27;h\u00f4tel Novotel de Coventry, au Royaume-Uni\u2026<\/p>","protected":false},"author":1,"featured_media":2263,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_coblocks_attr":"","_coblocks_dimensions":"","_coblocks_responsive_height":"","_coblocks_accordion_ie_support":"","footnotes":""},"categories":[28],"tags":[],"class_list":["post-2047","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ 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