News Pilot study on communication skills in children with Kleefstra syndrome Katerina Tzimourta, December 12, 2016August 19, 2026 Researchers at the Cerebra Centre for Neurodevelopmental Disorders at the University of Birmingham are inviting parents and caregivers of children aged 2-15 years with a genetic syndrome to take part in a research study regarding communication skills. For…
News Facial recognition program for distinguishing Kleefstra syndrome from Angelman Katerina Tzimourta, May 11, 2016August 19, 2026 The parents who run kleefstrasyndrome.org contacted researcher Rachel Winograd regarding a new study being conducted by Dr Lynne Bird, a geneticist at Rady Children’s Hospital in San Diego, in collaboration with...
News GeneSpark: New research program for Kleefstra syndrome Katerina Tzimourta, August 23, 2015August 19, 2026 At the international meeting for Kleefstra syndrome in Coventry, a new research project by Andy & Lindsay Klump and Hira & Neha Verma, called GeneSpark, was presented. Andy & Lindsay Klump are co-founders of…
News International meeting for Kleefstra syndrome in Coventry Katerina Tzimourta, March 8, 2015August 19, 2026 From August 14 to 16, 2015, another international meeting for Kleefstra syndrome is going to take place at the Novotel hotel in Coventry, United Kingdom. The meeting is an important opportunity for families and individuals associated with...