Category: Our History

From the very beginning we believed that something was wrong and causing her slow growth, yet we hoped it was all in our imagination and that despite the generalized lethargy and lack of interest, at some point she would react to…

The response from the doctors was immediate, regardless of the fact that my exams were delayed a few days in being posted on the blog. The electroencephalogram was abnormal and showed that the spasms were epileptic, and we started treatment. Depakine syrup 200mg,…

Six months have passed since the last post. And has anything changed in these months? Hearing the word epilepsy scares one. The average person's mind goes to violent situations, where the child has no awareness...

We may not speak, we may not walk, but we understand everything. Or almost everything. Our movement has not improved much, it cannot find the motivation to get up and stand on its feet...

It’s a domino effect. Everything in our organization is a domino. One thing affects the other, and heaven knows if you even know what out of everything the absence of this specific gene affects. Or rather, it affects everything, but you don't...

Muscle atonia is one of the main features of the syndrome. When someone hears this word, they imagine that a child with Kleefstra syndrome cannot raise their arm well, is a bit...